Reporte zur Charge NDC58160-0842-5

Symptomtext

12/13/2020: Woke up constant numbness & cold, tingling, pins/needles, electrical shocks, in both hands, fingers, & arms, tongue felt like it was burnt and cold lips. Constant numbness & cold, tingling, pins/needles and no reflexes, in both legs and feet from the knees down. Completely lost ability to walk and would fall to the ground, need help dressing, shower, eating, basically everything! Severe constant pain. Appointment w/ my PCP 12/15/2020 & office visit 12/18/2020 reg my symptoms & Dr. requested Brain MRI done 12/24/2020. Saw local Neurologist 12/22/2020 thought GBS disese & requested EMG test. Hospital ER 12/29/2020 sent home w/ walker 2 await EMG test. EMG 1/4/2021, inconclusive. See more below: Hospital ER again 1/5/2021, admitted. Bloodwork, MRI's of entire spine & no answers for my symptoms. Hospital Neurologist didn't have clear diagnosis, sent me to their in-hospital rehab facility through 1/15/2021 and still unclear diagnosis. Have been home, bedridden, since that day trying to get into a larger more capable hospital. Still had all of the above symptoms mentioned, however were worse, except burnt tongue feeling stopped on 3/4/2021. Due to Covid outbreak, couldn't get appointment with Neurologists until 2/4/2021 and appointment with Neurologist until 3/2/2021. Both requested EMG's. On 3/24/2021 had (3) MRI's (Lumbar.Thorasic/Cervical) and EMG. On 3/31/2021 had EMG. Both Neurologists separately diagnosed me with CIDP and both recommended IVIG treatment for this rare disease. On 4/20/2021 had Brain MRI & CAT Scan, per Neurologist. I started IVIG treatment through the guidance of the Neurologist on 5/11/2021 with a 5 day loading dose from 5/11/2021 to 5/15/2021. Had significant side effects. Had 3 day infusion 6/21/2021 to 6/23/2021 with continued side effects and continued with IVIG infusions/treatments every 4 weeks. Changed brand of IVIG, added IV fluids, IV Benedryl, IV Steroid, and Anti Nausea push to help lessen the side effects some. Due to decline between treatments, adjusted treatment to every 3 weeks, per the office visit/evaluation with my Neurologist on 10/7/2021. Still bedridden, and getting infusions every 3 weeks and increased dosage of IVIG infusions in February 2022 as well. Adjusting treatments under Neurologist care based on my symptoms and improvements, or worsening symptoms. As of March 2022 continuous treatment, have all symptoms, pain, bedridden, difficult treatments and side effects, no job since 2021, tons of medical bills, no social life, need family and friends to support with meals, house cleaning, laundry, grocery, all aspects of my life. Husband helps me daily, take to Dr. appointments and tests in wheelchair, etc. as of this form being submitting March 2022. I have been dealing with so much, I'm finally getting a chance to submit this form after continuing with lifelong infusions and possible other treatments, as there is no cure for CIDP.